Father opens up on GB News about 2-year-old daughter's tragic death after doctors missed diagnosis

Dubbed "a man on a mission" by presenter Stephen Dixon, Mr Story is a father who is attempting to raise awareness of type one diabetes in children.

His own daughter, Lyla, had the debilitating condition. However, she went undiagnosed and tragically died from her condition as a result.

Mr Story recounted the horrific event, with Lyla's mother originally taking the toddler to the GP with presenting symptoms including tiredness, tiredness and wet nappies.

She was subsequently given antibiotics to treat what the doctors believed to be tonsillitis, but later died in her sleep.

The cause of death by officials was later revealed to be undiagnosed type 1 diabetes, which led to acute diabetic ketoacidosis and a gastrointestinal bleed.

"It must be hugely difficult to know that, for whatever reason, Lyla was failed in that she obviously had a condition which is very treatable," Stephen, who is a keen campaigner for the cause, added.

Opening up on his motivation behind the campaign, Mr Story recounted: “Lyla was diagnosed with tonsillitis, and within 16 hours, she passed away.”

“Now, the coroner has written a letter of concern to the Royal College of Paediatrics and the Royal College of General Practitioners really harnessing the fact that type 1 diabetes needs to become the forefront of the minds of general practitioners again.”

"The majority of people that are diagnosed with type one are between six months and five years old," the campaigner told Stephen and Anne.

He continued: "NHS England - I don't know why they're saying this, but they have said that it's uncommon in young children.

"It almost feels like the gaslighting in essence because type 1 diabetes used to be known as juvenile diabetes."

Currently, Diabetes UK has confirmed that there are approximately 35,000 children and young people under 19 with the chronic disease in the UK.

"We were guilty as a family of not knowing about the four Ts, which is why I think it's a wonderful, wonderful slogan," Mr Story admitted to Stephen and Anne.

The four Ts of diabetes is a simple way to remember the main symptoms of type 1 diabetes, including going to the toilet more often, feeling more thirsty, feeling more tired and becoming thinner.

But Stephen interjected, saying: "But you're not guilty as a family of anything because, I mean, how would you know?

"People don't know, but medical professionals - it should be on their radar.

"It really should be on their radar because it would be so quick and easy to check for actually urine sample or a fingerprint test. And they would have known the bloods were through the roof."

Lyla's family launched a petition for Lyla's Law, which has almost 40,000 signatures, to ensure routine type 1 diabetes teting in babies, toddlers, children and adolescents as well as increased awareness and adherence to guidelines in healthcare providers up and down the nation.

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