Jesy Nelson has shared a heartbreaking update on Tuesday, revealing her nine-month-old twin daughters are back in the hospital.
The former Little Mix star posted an emotional photograph on Instagram showing Ocean and Story lying together in a hospital bed, their hands intertwined whilst watching television.
Both babies can be seen with feeding tubes in their noses, covered by a blanket.
The 34-year-old singer captioned the touching image: "Watching TV together holding hands. My heart."
Jesy Nelson's twins in her latest update from the hospital
|Ms Nelson welcomed the twins with her ex-fiancé Zion Foster in May last year, with the girls arriving nine weeks premature at 31 weeks.
They spent their first weeks in hospital following their early arrival, but Ms Nelson has not disclosed the reason for their current hospital stay.
The twins were diagnosed last month with spinal muscular atrophy type 1, a devastating genetic neuromuscular condition that progressively weakens and wastes muscles due to the loss of motor neurons.
SMA1 represents the most severe form of this rare disease, with sufferers typically unable to sit independently.
Ms Nelson's twins have been diagnosed with Spinal Muscular Atrophy (SMA) Type 1
|The condition often proves fatal before the age of five.
Ms Nelson has been told her daughters may never walk and might not regain strength in their necks.
The feeding tubes visible in recent photographs are necessary because the condition creates severe difficulties with swallowing, sucking, and breathing.
The girls also faced complications before birth, suffering from twin-to-twin transfusion syndrome whilst sharing a single placenta in the womb.
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Jesy Nelson gave birth to Ocean Jade and Story Monroe Nelson-Foster on in May 2025
| INSTAGRAMMs Nelson and Mr Foster have since separated following their daughter's diagnosis.
Speaking to the Daily Mail, Ms Nelson described the emotional toll of providing daily medical care for her babies.
"Every day is so full-on, I can speak about it, but I'll never be able to explain how intense it is until you see it," she said.
She further explained: "They're so tiny and I have to do things which I know are doing them good but at the time when they're crying and screaming, it feels like I'm hurting them and I hate that I have to be the person to do that. I just want to be their mum."
Despite the heartbreak, Ms Nelson remains hopeful her daughters will exceed expectations.
"My girls are the strongest, most resilient babies, and I really believe that they are going to defy all the odds," she told Jamie Laing on his Great Company podcast.
The twins have received a one-off gene therapy infusion to prevent further muscle damage, though it cannot reverse existing deterioration.
Ms Nelson is now campaigning for the NHS to include SMA screening in the standard heel prick test given to newborns.
Ms Nelson's twin daughters, Ocean Jade and Story Monroe, were born two months premature | INSTAGRAMMs Nelson says the £1 test could have enabled earlier treatment that "could have saved their legs".
The singer met with Wes Streeting, the Secretary of State for Health and Social Care and MP for Ilford North, in January to discuss her daughter’s condition.
Mr Streeting admitted he "didn’t know" the full impact of SMA testing until hearing directly from Ms Nelson.
He added that it was "hard to look SMA parents like Jesy Nelson in the eye" knowing that a simple heel prick test could prevent such devastating outcomes.